Finding our way through our families "normal" life of illness and special needs children.
Wednesday, August 28, 2013
Somedays I Feel Like a Toddler
It's 6 am and I am getting up. I DON'T like mornings. I don't know what I was thinking when the receptionist said will 9:30 work and I shook my head. I must of been in a post sleep dream state. Yes, I can be here again at 9:30. I love mornings. We can do so much while We're in Fort Wayne/Toledo if we go in the morning. Target, the mall, we could go to the zoo. Then I realize besides the fact I have no money. I am too tired and ready for a nap after the doctors and the drive. I still have to drive back. We'll stop at one store maybe two. I'll rest tomorrow. Oh, I have to do this again. I'll rest this weekend. Fine, I'll just run into Target and buy what I need. I won't look at anything. Eyes on the floor. Look at that hat, I really could use a new pair of shoes (use not need), storage containers (I can get organized)... Get back in the car and go home and take a nap. Somedays I feel like a toddler. I argue and throw mini tantrums with myself. I know what I have to do to stay healthy, but I just want to play while that bright yellow thing called the sun shines down on me. Pretend my body will not say that's enough you need to lie down after 20 minutes in it's warmth. So in my mind I am stomping my feet saying no this is not fair, while I take the drive home and get into bed for a nap. And as I lay there I remember how thankful I am that I can walk, clean my house, and cook. My kidneys and brain are doing what they are supposed to and I don't have a fever. I forgot how nice it is to not have a fever. Ok. Nap time is good.
Friday, July 26, 2013
There Is No "Easy Button"
I love the Staples Easy Button commercials. I find myself looking for that button often. Being a wife and mother is difficult on its own but add in Type 1 Diabetes, Autism Spectrum, Lupus or any illness, past hurts, or lost hopes, you may find yourself looking for that button on a daily basis.
It comes down to this one simple fact. We live in a world full of sin. Not a single one of us is without. We hurt each other without even realizing with a quick word, a simple act.
Life is not fair. A lesson we teach to our kids every day. It's not fair you are sick, you can't handle the plans changed, somedays mom has to stay in bed. Life isn't fair. I hate to say this but it's true in a fallen world.
As I was looking again for that Easy Button, I thought of the red service phone you find in the store. If you need help you just need to reach out and ask for it. I realize I may never get to push the Easy Button but I will get down on my knees and reach to a God who is ready to answer with grace and mercy.
“Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light.” Matthew 11:28-30 NIV
Thursday, July 18, 2013
Miserable But Stuck It Out
We decided it would be good for our 11 year old son to go away to scout camp. That's asking a lot from a boy who does not like change. We always do our best to prepare him in new situations. For example last year we took a trip to Washington D. C., we explained how the subway system worked and he was excited for his first trip. His excitement changed quickly to fear when he was pushed aboard with out us. He was with someone from our group but it wasn't enough. From then on he had a death grip on my hand every time we boarded. Then this spring we flew to California to visit family all was well until we became lost and couldn't find the 405 or In n Out. Luckily we found both and since Elliott wouldn't eat his In n Out burger Jim ate two double doubles on the 405.
As we prepared him for camp his excitement grew. Send off had very little tears. We decided to ease his anxiety by being chaperones later in the week. Tuesday, I received the first text, I wouldn't speak to him but texted I would be there the next day. Due to all the rain the schedules had been changed and he is not the go with the flow kinda person. Before he left I shared the verse Proverbs 3:5-6 Trust in the Lord with all your heart and lean not on your own understanding. I reminded Elliott God has control and knows what is to come and he can come to him with his anxiety.
When I arrived Wednesday he begged me to take him home. I reminded that I had a responsibility to stay and so did he. Each day a new change would occur, his anxiety would increase. My heart broke for his tears. There was no reason for him to leave, he was safe and he had moments he actually enjoyed himself. Jim came for the last night and watched as Elliott was awarded a special award for the camper who was most miserable but stuck it out to the end. He's pretty proud of his award and has decided he won't be returning next year.
Monday, June 24, 2013
We Got the Call
The call came. I thought it was to tell us there is a problem with our home study. Surprisingly it was for a child. I had one of those moments when you praise God with dancing and singing. Sunny joined in the jumping and crying. Elliott sunk deep in his chair embarrassed I would behave this way in front of his friends. Nothing can contain the joy I feel.
This journey has been so long. We began talking about adoption after we lost our twins, it was my third pregnancy. We knew I really shouldn't have children. Then Sunny came along. We started the process after losing another child. We were looking into different agencies when our heart was opened to the need for children in foster care. We chose a local agency and started the home study. The next week we found out Elliott was on the way. A few years passed but the longing deep inside never went away. Again we found a local agency and started the process, Jim became injured and out of work. Everything was put on hold. Started back up, Sunny was diagnosed with Type 1 Diabetes. We had no idea what was ahead, we again stopped the process. Next a lupus flare. As I would look at my prayer journal. My unanswered prayer would bring a deep ache. I grieved adoption, like giving birth to more children, was a lost hope. My prayer was Adopt in 3-5 years. I wanted to write no for the answer. I could never bring myself to do it. Last year we started the process again. We were hit with trial after trial during this process. This time we did not give up. I truly believed the time is coming. After 13 years, we got the call. We now wait to see if we match. This one may not be our child, but there is one out there for us and we are officially ready. God did hear that prayer and one day soon their name, not no, will be written as the answer.
Consider it pure joy, my brothers and sisters, whenever you face trials of many kinds, because you know that the testing of your faith produces perseverance. Let perseverance finish its work so that you may be mature and complete, not lacking anything. If any of you lacks wisdom, you should ask God, who gives generously to all without finding fault, and it will be given to you. James 1:2-5 NIV
Too Short To Not Be Intentional
We are settling into a summer routine. Sleeping till 10 AM (Sunny, when I forgot she is not at school), eating ice cream for breakfast (Elliott thinking I was still in bed, while I was having my quiet time). It is turning out to be a very relaxing summer, although it may have something to do with my resting from surgery.
Thankfully this surgery has reminded me of a few things. Resting is good. We will survive the dishes in the sink and the laundry basket full. I have amazing friends and family. And I want to be intentional. Intentional authentic relationships. The type of relationships that grow and need cultivating.
Last summer was quiet. My kids and I went our separate ways. They are older, what teen and tween want to hang out with their mom. At least what I thought. I think I missed something. I forgot how much my kids still need me. How much they need my focus, my intentional time. Since the start of summer, we've had more conversations, more goofy moments, more intentional time. It takes effort but it has been so worth it. Not only do I know my kids better but I am learning some things about myself.
Realizing years ago that nurturing isn't one of my natural gifts, I began to pray for it. I have been blessed by trials to learn the true meaning of nurture. One of the gifts hidden amidst Type 1 Diabetes. Each day becoming a better mother. Not perfect but better. My next prayer is to be intentional. Remembering no matter what stage my children are in they will always need me in some capacity, even when they or I may not think so. Giving them all of my focus in our time together. Life is too short to not be intentional.
Thankfully this surgery has reminded me of a few things. Resting is good. We will survive the dishes in the sink and the laundry basket full. I have amazing friends and family. And I want to be intentional. Intentional authentic relationships. The type of relationships that grow and need cultivating.
Last summer was quiet. My kids and I went our separate ways. They are older, what teen and tween want to hang out with their mom. At least what I thought. I think I missed something. I forgot how much my kids still need me. How much they need my focus, my intentional time. Since the start of summer, we've had more conversations, more goofy moments, more intentional time. It takes effort but it has been so worth it. Not only do I know my kids better but I am learning some things about myself.
Realizing years ago that nurturing isn't one of my natural gifts, I began to pray for it. I have been blessed by trials to learn the true meaning of nurture. One of the gifts hidden amidst Type 1 Diabetes. Each day becoming a better mother. Not perfect but better. My next prayer is to be intentional. Remembering no matter what stage my children are in they will always need me in some capacity, even when they or I may not think so. Giving them all of my focus in our time together. Life is too short to not be intentional.
Friday, June 21, 2013
One Step Ahead
I feel as if I am going out of my mind. I have now been down for 4 weeks straight, almost 5 with at least 2 more to go. I found I have a slight complication, an abscess in an incision. It's being treated with antibiotics and more rest. I was actually glad to hear it is an abscess, I really didn't want to hear "I told you, you're overdoing it". But I am now resting again as told, I even confided in friends that 2 weeks of being down was not enough and would gladly take any meals offered. You know you have good friends when they scold you, then give you a hand up.
I will say this whole hysterectomy path was a wise choice. After all the troubles I had, I do feel amazing! And when I say amazing, I mean AMAZING! PRAISE GOD! Of coarse unless I overdo it. My doctors are all very happy with me. I listened. I have also decided after being encouraged by two cancer genetic counselors, to have the BRAC 1 gene test for breast cancer. It really was not hard. I had to spit which really grossed out my 13 year old. Added bonus. My insurance company actually wants to pay for it. I think my family may cost them a little more than the average family and will do anything to lower their cost. And what will it do for our family, give us a little direction and peace of mind, knowing for once we may be one step ahead.
I will say this whole hysterectomy path was a wise choice. After all the troubles I had, I do feel amazing! And when I say amazing, I mean AMAZING! PRAISE GOD! Of coarse unless I overdo it. My doctors are all very happy with me. I listened. I have also decided after being encouraged by two cancer genetic counselors, to have the BRAC 1 gene test for breast cancer. It really was not hard. I had to spit which really grossed out my 13 year old. Added bonus. My insurance company actually wants to pay for it. I think my family may cost them a little more than the average family and will do anything to lower their cost. And what will it do for our family, give us a little direction and peace of mind, knowing for once we may be one step ahead.
Thursday, June 13, 2013
Look For Your Invitation, My Inspiration to cook
I am enjoying my time down. O K, I am really trying to. When I am healthy I do a lot. I had to stop looking at Pinterest. It can be depressing when you are a doer and all your allowed to do is sit on the couch. I have made quite the progress on the kids quilts and read some good books. My favorite, Bread and Wine by Shawna Niequist is a great book about gathering around the table with friends and family. Just to let you know I am planning on having dinner parties as soon as I am able. I can tell you the company will be wonderful but can't say the same about the food. I'm not saying I am a bad cook. I worked at a catering company and picked up a few lessons from the chefs. Unfortunately after my last flare I had memory loss and it seems it wiped out my cooking skills. Or possibly they were bad to start with and my family is really nice. Part of it comes from growing up Italian in Southern California, I can make a mean pizza (not frozen) and my pasta is perfect, always al dente. Our family has a standing Taco Tuesday and Pizza Friday. I do enjoy baking and have made progress in that area. My progress is due to some excellent recipes I've been given by friends. Usually after Jim has eaten the majority of cookies at any function we attend, I know I need to ask for the recipe.
So I guess what it comes down to is I don't have the right recipes. I know the techniques, just not the ingredients. I started figuring this out early in my marriage. I really don't know how to cook traditional "Midwest" food. Jim wanted to have beef and noodles, I asked how to make it, he laughed and said beef and noodles. I also asked how to make pot roast.
One of the benefits of being down for 6 weeks is all the meals our friends have blessed us with. My family has noticed how wonderful these meals are. Not just because they taste so delicious, but we can feel God's love through their service. These meals have also inspired me to read more cookbooks and use my Allrecipes App more often. I am planning menus for those dinner parties, I'll try a new recipe every week, and its never to late to learn to cook. I promise I will test it out on my family first. They tend to be brutally honest when it comes to my cooking adventures. Look for your invitation, I promise you'll have a good time and we always have frozen pizza as a back up.
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