Showing posts with label Lupus. Show all posts
Showing posts with label Lupus. Show all posts

Monday, August 13, 2018

White Flag

Some days we just need a break from our chronic illness.


I need a break. I think it. I say it. I don’t do it in a healthy way. Lupus, Type 1 Diabetes, or any other chronic illness does not allow breaks.


My threshold for dealing with lupus has grown but also has my ability to forgot what I need to do to live my best life with Lupus.


Recently my daughter with Type 1 diabetes had enough. She took a break. And like Lupus there are no breaks. After not watching her sugar constantly she quickly went into Ketoacidosis. She was tired of living with Type 1. 


I get it. 


We want a break but our bodies don’t allow them. If I head out to run errands without my sunscreen I will spend days in bed with debilitating pain and fatigue. One day of not being vigilant with my Lupus and my body rebels. 


We want to take a break and we know it’s not the best for our health. So what do we do. 


As we sat in the hospital I suggested we give each other a break. When keeping track of meds, blood sugar checks, or applying sunscreen begins to overwhelms us we will tell each other. We will wave the white flag and say we surrender, will you help. Remind me to take my meds, slow down and rest, reapply my sunscreen, wear a hat. I will remind you to check your sugar, bolus your insulin. 





There is no reason to go through a chronic illness alone, reach out and find someone you trust. Wave the white flag, surrender, and stop trying to do it all yourself. 


In what areas of living with a chronic illness can you wave the white flag, surrender, and ask for help?

Thursday, April 5, 2018

What Do You Have to Share?

This morning I read a little gift and it was SO needed. Each day is a gamble when you live with Lupus, Celiac, or any chronic illness. Today, I am in pain and after changing out of my pajamas and walking downstairs I am exhausted. Today, we have doctor's appointments. Hello! Today is not a good day...but we don’t get this choice. 


What I did get this morning was a gift of wisdom. As I turned off my alarm I pondered whether to take a quick scroll through social media or open my Bible app. Today, like most days when I make the right choice, I find a little gift. 


Do not neglect to do good and to share what you have, for such sacrifices are pleasing to God.

Hebrews 13:16 


It is easy to become disheartened when you have to say no I can’t help. We forget we each do good in different ways and have different things to share. Recently there have been several families in my community needing meals. I want to do good and share what I have with others but I’m not dependable because it's a gamble to know if I'll be well enough. I used to be frustrated with myself. Now, I know saying no is okay. I have to do what I am able to do, this is all, not what good I see every one else doing, what they have to share.


I may not have money to donate to a cause or energy to provide a meal for a family but I am able to send an encouraging word. What I have most days are words or just a smile. Giving what I have is not hard, it’s just that sharing what I have feels a little risky at times. And what I have to share is not what you have to share. Maybe you are a listener, a doer. Whether you have financial resources, musical talent, the gifts of wisdom, teaching, or listening we just need to use what we have and share it. There is a saying about Lupus. I have Lupus, Lupus doesn’t have me. Yes, I have Lupus, but I also have gifts I can continue to share with others. Today what I have to share will not include getting much physically accomplished (the laundry pile from my last post may have doubled in size) but I have words and a smile. 


What do you have to share?





Wednesday, March 21, 2018

You Are Never Alone in the Fire

Life is not fair. We all know this. If you have a perfect life with no major tragedy you are in the minority. And even though life is not fair we have a choice. How am I going to view my life? What is my perspective? Because honestly I will tell you straight up, my life has had it's sucky moments...And there will be more sucky moments. So here I am on my 41st birthday thinking about my sucky moments...These moments have defined my life and these sucky moments are now blessings. 

Our pastor this week asked us to write down moments in our life God has brought us through. I often think of the story of Shadrach, Mechach, and Abednego in Daniel 3. Their's is a story of life in sucky moments.  They are bound and thrown into a fire, when the king looks into the fire there are no longer three bound men, there is a fourth. Sometimes we are freed from the fire without the smell of smoke, but there is no doubt I have never been in the fire alone. Looking back on my 41 years fires have raged, each time I have come out unbound, and never alone.

I have decided to share a couple big moments to celebrate what God has brought me through and in looking back lessons which prepared me for future fires. These are the fire/sucky moments that rush into my mind when I begin to smell smoke, to remind myself God is with me. 

The death of my sister at 14. She was my rock. She suffered with Lupus for years with dignity. The lesson I will carry for all my days. Love hard, fight hard.

Just a year after her death my Lupus presented in my Central Nervous System. Literally, I lost my mind. I developed psychosis. There were hallucinations, I couldn't spell my name. I wanted it to end. I attempted suicide then spent four weeks in inpatient psychiatric care. I still suffer from chronic depression, I still check in with a therapist. It wasn't until my daughter was in high school that I would see the benefit, the blessing, the lesson. I could see her slipping, going deeper into herself. I saw the signs only because I had felt this darkness so many times. It is like quicksand. Because of my time in the fire, I could stand beside her in hers. And here we are two years later, watching for hot spots because depression doesn't just get better, preparing for graduation and college where she plans on studying music therapy. 

She is graduating in just over two months. I was told I wouldn't be here, she would not be here, we would not survive. I was pregnant with her, just 12 weeks, the doctors asked Jim into the hall. I could hear the question, "What plans do you have?" What plans? I was dying. They wanted to know if we needed help with hospice, did I want to go home? I choose to go home and wait. I had never felt so much peace. Each week I would see the nurses and doctors, each week no improvement. Then 30 weeks came and the doctors called, we don't know how but you're showing signs of improvement, your baby is thriving. She was born two weeks later. They rushed her off. I didn't see her till the next day. I felt peace. When I became pregnant with our son 18 months later we didn't know what the outcome would be. We were given an ultimatum by the doctor. Abort or don't watch your daughter graduate. She wasn't gentle, she was fearful. She had watched her mother die of Lupus. She knew the stress of each pregnancy and each flare to come will damage my body. We choose life for as many days God will give us. Love hard, fight hard.

These are my big fires, moments that suck the breathe out of me. There will always be fires, our family can smell the smoke right now. But we know we are not alone, God is walking right along side, unbounding us, and in time we will see the lesson, the blessing. Happy birthday to me as I am sitting here at 41 with my family, loving hard, fighting hard.




Saturday, February 17, 2018

To Be Revived I Must Be Healed

I asked God to revive me this year. Revive. The word I chose to transform my life in 2017. I did not realize to be revived I would need to be broken or allow what has been broken to be exposed.





Revive - to give new strength. 


He will renew our strength. Isaiah 40:31...As if we have lost it...


I thought being strong meant I don’t fall apart. There are no cracks in my faith. Everything looks good from the outside so everything on the inside must be good. 


Strong...because God will keep me strong. Those who trust in the Lord will not grow weary. They will stay strong.  I am growing weary, losing my strength. However, I still believe God will keep me strong enough to not grow weary to the point I cannot persevere. I think...  What if cracks begin to form in my trust and my joy begins to crack? Doubt begins to seep in, am I too far past the point of perseverance? What if healing is what I need to persevere? To be revived?


As I have asked God to bring me revival I expected him to bring a fire to my faith. Instead, it has brought me to my knees, broken with no words, calling out Lord, Lord. 


I’ve spent years praying for physical healing but never have I thought to pray for emotional healing. Illness has taken a toll not only on my body but on my mind as well. And surely the cracks are now clearly evident. I may greet you with a smile, but I find myself retreating. I haven’t been in a church service in months. As the music begins the tears flow and I retreat. My heart was not prepared for the emotional trials we are now facing because I have not allowed healing to take place. I ignored my emotional health while urging my body to fight. The ups and downs of life with a chronic illness leave scars not only on my body but in my mind as well. It has taken a family trial to bring these scars to light.


And where light is allowed healing will begin. This is where I will find my revival, healing. It is here I will gain new strength, it is here I am challenged to allow Him to heal my heart.


...if anyone is in Christ, he is a new creation; old things have passed away, and look, new things have come.   2 Corinthians 5:17 


Tuesday, January 16, 2018

When Lupus Tries to Interrupt a Whole30

I am officially halfway into my first Whole30 and it has been full of highs and a few lows.


I’ll share my lows first but I have a hard time labeling them lows because there are valuable lessons in each one.


It is not a magic cure. I know not everyone has the same results but I was hoping the amazing energy would last. I started off feeling great but my Lupus decided despite my healthy choices to take me down. 


Overcoming food issues is not easy. I have dealt with eating disorders in the past and I did not expect the fear. Fears of eating too much, not knowing my weight. I have some work to do.


Highs, these are awesome!


My celiac disease is completely nonexistent. Eating clean whole foods takes away the majority of the risk of being glutened.


Sleep is great!


Learning to notice my non scale victories. I am totally loving The Whole30 Day By Day by Melissa Hartwig. Each day I find encouragement and I am reminded to look for my non scale victories. If you are thinking of planning a Whole30 this is an excellent tool.


Trying new recipes. The Whole30 is one man show at our house, except dinner. Although my family seems to be eating a 2nd dinner, usually consisting of cereal and oatmeal pies, they are served a delicious Whole30 compliant dinner. But 2nd dinner is a real thing at our house without a Whole30. No one has complained. Roasted broccoli and cauliflower rice are now a family favorite. I have accepted I cannot control all the food that is brought into the house or how many dinners some people may eat. I can control saying no. 


Saying no is big for me, especially when it comes to food. Food is my comfort when I am sick. So the fact that I’ve felt like I was hit by a truck for the past week and have not focused on food is a giant step.


There are definitely more highs than lows but even my lows are highs. They have opened my eyes to emotions that are just below the surface. Emotions that are ready to be exposed. It will be difficult but I am being  given the chance to see if I can really put these lessons into practice. My ability to say no is going to be challenged. I am currently sitting in my doctors office and the visible signs of Lupus are present. Puffy hands that barely move and the no denying butterfly rash. I am officially no longer in remission. Prednisone burst starts today. Prednisone and food control have never been compatible for me. I will be relying heavily on prayer partners and bible verses, along with the lessons I’m learning through my non scale victories. I think I’m going to be alright, but I do wonder how my family will feel about a lock on the pantry. 



Here is one of my favorite easy go to meals. Sautéed Salad and Chicken Sausage.



• 2 t Garlic Ghee

• 1/2 Cup Beets

• 3 Cups Kale & Shredded Brussel Sprout 

               Salad mix

• 1 Chicken Sausage Link


Melt Ghee in frying pan then add remaining ingredients. Sauté until salad mix cooks down about 4 minuets. *Always remember to check your labels for Whole30 compliance.




Wednesday, January 10, 2018

Allowing My Body To Heal

I’ve been planning on completing a Whole30 since my Celiac diagnosis last March. It was suggested by my nutritionist to see if there are other foods that don’t like me even though they taste so yummy. I’ve also had enough of being sick and tired. I know this won’t be a fix all, but if there is one thing I can pinpoint and say - you make me feel terrible, are you really worth eating? I’m good with it. A Whole30 basically consists of vegetables, most fruits, lean meats, and healthy fats. So, real food. 


I kept pushing my start date back mainly because my life is hectic and partly because of procrastination. An Asperger teen, a Type 1 Diabetic, who is graduating (a whole other post!), and life with Lupus and Celiac is enough normal I can handle. When our world turned upside down a few months back I really thought no way, I can’t do a Whole30 now. But honestly, would there ever be a good day to start. When January 1 came I decided it was time, I’m doing this. 


Day 10 is where I stand today. It’s hard. The food I have struggled with is cheese. I love cheese. I also love cupcakes, of course they need to be gluten free, but they’re not Whole30 compliant either. While cupcakes may be a favorite, dairy is my first love. There are many stories of food raids during my toddler years. I would often be found with a stick of butter or chunk of cheese. Luckily, I’ve overcome the urge to eat sticks of butter but cheese, well just thinking of it makes my mouth water. On day 6 when the kid’s pizza came out of the oven in all its bubbly, cheesy goodness, I lost my mind. I have no idea where this deep feeling of anger and jealousy came from and it was intense. Over cheese. 


Hopefully dairy will still love me when I reintroduce it. This is what is great about the Whole30 it’s not a diet. It’s a time to allow my body to heal. At the end of my Whole30 let’s hope there will be a cauliflower cheese pizza in my future. In the meantime I’m going to enjoy my chicken curry lettuce wraps and butternut squash with ghee. Ghee is my new love!





Tuesday, October 3, 2017

Remember What Makes You Smile

When someone you love or you live with a chronic illness there are times that feel as if you are frozen. Motivation slows down. Thoughts don’t connect as quickly as they should. 

This is where I am. This is where I’ve been. 

I can blame how my kids are dealing with their issues, Lupus fog, a Celiac attack, or depression. Although it may help distinguish what is going on in my body and mind, blame does not help. My mind is not at ease. So how do I move forward. 

There isn’t one solution but here are a few of  the strategies I use to keep moving forward:

Give myself a break. Take time to shut down. Read. Netflix binge. Make no apologies for what needs to be done and remains undone. 

Move slowly. Choose one thing to do today. Do it. Be thankful I can.

Choose five things. Before I go to sleep I write down five things that made me smile today. Even if it’s just a little. 

Assess my body. What physical symptoms am I feeling? Do I need to contact a doctor?

Assess my emotions. Where are they coming from? Am I dealing in a healthy manner.

Pray.

Repeat my mantra. When my heart is overwhelmed lead me to the rock that is higher than I.

Give myself grace. 

Living with an illness is hard. Living with children with illness is hard. Sometimes it’s harder than others. Sometimes it doesn’t make sense. Sometimes it’s overwhelming. 

In those moments I’m overwhelmed, I can take a deep breath. Remind myself this is just a moment. I’ll get through it. Good moments will come too. 

As this past month has taught me, I may have to take A LOT of deep breaths. Take a few breaks, see my doctor, help my kids process their struggles, visit with friends and talk deeply. Most of all give myself the grace I need. Lower my expectations and remember what made me smile.

What made you smile today?



Wednesday, August 9, 2017

The Couch Is Calling


Every year my plan is to start the school/work year off with a clean house. For myself a clean house is a happy place. I 100% believe the rest of my family find their happy place in piles and chaos. Binders make me happy. Binders contain my mess. My life, like my binders, can not always be kept neat and tidy. So, I am doing everything that needs to be done to start a neat and tidy school year. Care plans, behavior plans, 504 reviews, doctors appointments. As I type, I'm on the phone rescheduling appointments to fit another in. Just a note, taming my compulsion to constantly multi-task is on my list to improve on my mess.




I am surrounded by my mess and I HATE messes, but I may have made a breakthrough. This mess, that is my life, I am pretty proud of it. These kid's, who are strong, fight everyday. Overcoming battles I can only walk alongside. This husband, who works long hard hours, stands by my side as I complain how crummy I feel.

This mess is my life.

This mess is what it takes to make sure my kids have the best fighting chance. It is what allows me to have time with my husband. There will always be laundry and dishes. Paperwork and doctor's appointments.

Time will not always be. So, I am going to go lay on the couch. I'm going to rest in the midst of my mess. Tomorrow the school year begins for me then this weekend our annual Acts 2:42 Camping trip. I am out of time. I could allow myself to be overwhelmed by all that still needs to be done. I could also recognize my limitaions as a fighter of Lupus and Celiac Disease. Recognizing my limitations gives me time. Time with family. Time with friends.

Yep, the couch is calling.

Monday, June 5, 2017

The Lazy Mom

It always seems the school year goes slow, then without any warning summer arrives. 

I used to dread summer.

Summers are hard for our family. With severe photo-sensitivity because of my Lupus I have a short window of being outside. Before 9am and after 6pm, otherwise I am useless for at least a day or two. I spent the summers watching my kids from the window or the shade of a tree. The kids new I wouldn't be joining them on the playground or in the pool. 

Then there was the day, while I was sitting in the shade, when one comment broke me. The lazy mom. It was only one comment. My heart hurt. My kids were four and two. I knew they were safe, they knew I was always in view. My kids never complained. 

So, why did I let one comment bother me? In all honesty...it was what I thought. I hadn't dealt with what parenting with Lupus would look like. 

As the kids got older they never questioned why we went to the park at night or had limited play dates outside. They didn't know any different.

Parenting with Lupus will have its challenges. There will be events I miss. Lots of naps. Sudden stays with friends. Visits in the hospital. Dad will cook via take-out. Summer days spent binging on tv. Challenges are what we face every day and have strengthened our family. We wouldn't have become the people we are without challenges. We have to take the good with the bad. And maybe we appreciate the good a little more. 

I don't dread the summer as I once did. I've become quite content to sit under my umbrella. Watching from the shade, I've slowly embraced my limitations. I will never be afraid to speak up and share what having Lupus is like to someone who is quick to judge. But, most of all, I no longer believe I'm the lazy mom.

 

Saturday, March 18, 2017

Stand in the sun, breathe in the woods

Being in remission, I am gifted each day with limited pain. I take advantage. I stand just a little longer in the sun. Lose myself in the woods. Listen to Jim and the kids intentionally. Cancel less with my friends. 

We aren't guaranteed any time here. I could spend every moment questioning why I am here and my sister is not.

This year I turn 40. The year I was told I'd never see. 

My senior year my youth group leader asked all of us what we wanted most in the future. My answer...I want to play bingo. See the sunset from the porch. I want to be old, sit with my friends and family and reminisce. Share memories of those we've lost. The trials we faced. The lessons we learned. The gifts we gained. 

I knew from a young age tomorrow is not guaranteed. I'd lost my sister. And now I was given a time line. Have you made arrangements? The social worker will be in to help set up hospice. I was 21. We somehow were blessed with more time. We had a beautiful girl. A year later I was being told to have an abortion. Time with this beautiful girl or a chance to have another child. Do you want to see her graduate? You're body will give up before your 40. The doctors words. I chose the risks. More Lupus flares, harder days. 

And here I am. 40. 

My senior year I saw myself at 40 with a career in lobbying for health care in Washington. Maybe I'd be married have a couple kids.

And here I am. A very proud lunch lady, married for 18 years, and two kids I'd risk it all for again. My body is damaged. Brain function lost, where did I put the milk, did I know you, did I put my pants on. Arms and legs that forget how to work. 

Every pain worth it.

Tomorrow's not guaranteed. I have today. 

A day to love the hard to love, forgive the unforgivable. Stand in the sun, breathe in the woods. Argue and make amends. Watch the sunset. Love.

 

Sunday, December 4, 2016

We Were There, Take a Deep Breathe

This week in diabeatus land. Yes...I know it's spelled wrong but it sure felt like it beat us...

Everyone was sick. We took turns. No getting it all over at the same time. And as a Lupus mom I do need to warn you this post is coming from a very unrested mom, which is her own fault for doing too much...

But it's time for a valuable parenting lesson.

Take a deep breath. It's going to be hard...remember we were there once too.

We all know it, parenting is not for the faint of heart. We fail our kids. Our kids fail us. It feels like we get no where, but we must because the majority of us are productive & decent members of society.

So this is what our family learned. After dealing with continued high blood sugars after being sick, I decided to check the sweet teenager's blood sugars because she seemed a little off. Those who know someone with Diabetes knows the look. It's kind of a Hulk look. Like right before the gentle doctor changes. We call it Sunny smash. What I found broke my heart. She had missed too many checks. It was too high too even register. A reminder of how vigilant those with Diabetes must be.

We are at the point when it's time to let go a little, help her learn to take responsibility for her health.

It's hard.

It's days like this that I'm thankful for Lupus. I really could have yelled, taken away her phone, grounded her for life. But I remember how hard as a teen it is to have your life controlled by your illness. Take your meds, where's your hat, do you have sunscreen, you can't go out during the day. It sucked. Sorry, there's really no nice way to say it. At times I rebelled, four trips to the tanning bed began a flare with kidney disease.

This is hard stuff...with real consequences. When you are parenting a teen the choices they make and the choices we make in guiding them have real hard consequences.

So what did we do when we found out that letting go isn't as easy as we'd thought. We hugged her, said we'll try again, be a more vigilant, bug her a little more.

She's growing up, learning to make her own hard choices. And after a week she's got a better handle on her blood sugar. She even gained a new kind of freedom. She drove her self for the first time. This Lupus mom was exhausted, but oh so excited when she realized her teen could now drive herself. Just a little confession this said mom may have also ran around the house looking out every window and maybe on to the front porch to watch her daughter's well deserved taste of freedom.

Don't worry this was taken during her first time driving home. She's a much better driver now!
Remember we were there, take a deep breath, it's gonna be hard.







Tuesday, October 21, 2014

Held In Our Hearts




I think of the children we've lost through miscarriage often. But I never thought how it would affect the two children we were blessed to raise.

She was my fourth pregnancy and she was only 6 months old when we suffered our last miscarriage. Never knowing whether she has sisters or more brothers, if they'd look more like her brother or herself. 

She loves them any way.

As we sit together and share tears of what could have been our family. She asked me can we name them. A question that showed me she didn't need to meet them to love them. That just like her dad and I there are empty places in her heart.

She is looking for a connection. Showing us how big her heart is.

Losing a pregnancy didn't only affect my husband or I. It affected our family. To think we’d be a family of nine. Today, we shed tears in rememberence for the five sweet babies our family holds in our hearts. 

***October is Pregnancy and Infancy Loss Awareness. 

***Pregnancy loss and complication is very common in Lupus. Patients are advised to not become pregnant unless their disease activity is under control.

Tuesday, May 13, 2014

Heals All My Diseases


  
How are you? I really don't like to answer this question. I often answer ok because I AM ok. I am ok because I have come to rest in the Psalm above. Yes, I do not feel well most days. My body often decides it will not function no matter how hard I try to make it. Honestly, I should answer I am great. I know God will heal all my diseases.

I just know the healing will come when I return to my Lord. When speaking with someone about Lupus, I always mention my sister. Most are always shocked to hear Lupus can be terminal. My sister Brandi, she was healed of her Lupus. In my weak moments, in all honesty, I am jealous. She no longer has fevers, pain, a body that does not function. And she can dance in the light of our Savior. I miss her. But losing her, when it seems like forever, is only temporary. Through her death I was made stronger. A gift. 

Each day whether my body is too weak to climb the steps into our home or strong enough to make a grocery trip without having to lean on a cart, my soul grows stronger. I am learning to live with a purpose. Learning, God wants to use me. Even if my hands and feet cannot be used for his purpose. He will use my heart, my mind, my soul. I am learning to give God my all in the way he created me to be beneficial in his great plan. 

And I will praise him all my days. 

He fills my life with good things. 

He surrounds me with love and tender mercies.

He will heal all my diseases. 

And until the time comes I will live my life with my whole heart, mind, and soul for his purpose.


Friday, February 7, 2014

Stay Strong

This weather has been brutal, although beautiful.  For me, it is taking it's toll. I am exhausted...Sun + Snow...My new enemy. I really just want to rest. I tell myself tomorrow you can take the time. 

There is too much to be done. Therapy, lessons, doctor appointments, dishes, laundry, endless picking up ..day .. after ..day. Never enough time.  The 20 minutes I took with God in the morning isn't enough. 

I find myself in tears after another run to the store for what I've forgotten. My body is exhausted, joints ache, rashes from sun exposure....but there is still more to do, running through my mind. My mind is the most exhausted of all.  I want to say the dishes and laundry can wait. I just want to sit, not make any decisions, escape for a few minutes in a book without having to get up, answer an email. A verse comes to mind -

but they who wait for the Lord shall renew their strength; they shall mount up with wings like eagles; they shall run and not be weary; they shall walk and not faint. (Isaiah 40:31 ESV)

Wait..

Stop..

Remember..

Who I believe in...

A God who offers me wisdom and discernment for those to do lists, patience, humility, strength to carry on.

I return to a disheveled home. And IT IS OK. I sit next to my husband, where I belong right now. Open my book, I realize I'm not sure where I left off, should of used a book mark. But the almost 14 year old has placed one there for me. A simple index card, with words God knew I needed to hear. Stay Strong.

Sunday, December 22, 2013

I Can't, I Quit

Lately I've wanted to throw in the towel. Yell, I quit at the top of my lungs. This is not something new. Quitting is always my first reaction to life's troubles. My mind momentarily shouts RUN, your not capable. Then I regain my thoughts and remember I am not alone. I can do this. 

I make the mistake of turning on Netflix instead of opening my bible. I use tv as an escape. It's much easier to live life in someone else's life. Their problems will be settled by season end. If only I could skip forward to the end, but that wouldn't be living my life.

My life full of troubles. We all have something we struggle with if we're honest. If we're authentic we can say I need a shoulder to cry on, I need a sister to tell me the truth in love, a safe place to confess my sins, a friend to hold me accountable.

Tomorrow I will not wake up and be healed of Lupus, have a perfect marriage, a child without Type 1 Diabetes, or Autism. No, tomorrow I will awake and do my best to get out of bed despite fatigue and joint pain; love unconditionally; monitor blood sugar and boluses, encourage her when she feels different from all the other kids; be patient when he's upset we're off schedule or plans have changed.

I will do my best because even though I begin to think I can't, I quit. God reminds me I can. God has put me here, allowed troubles to arise, and given me everything I need.

But He said to me, “My grace is sufficient for you, for power is perfected in weakness.” Therefore, I will most gladly boast all the more about my weaknesses, so that Christ’s power may reside in me. So I take pleasure in weaknesses, insults, catastrophes, persecutions, and in pressures, because of Christ. For when I am weak, then I am strong. (2 Corinthians 12:9, 10 HCSB)

Friday, October 4, 2013

Paper Plates, the Dishes Can Wait

My body is saying no more. I have pushed it to its limits. After another day in fluorescet lights waiting for an answer to our daughters illness my body will not work. I do not have time for a down day. But I hear His clear voice. Rest. And I become thankful. I can fight the lie that is playing in my thoughts, You are lazy, just get up. Lies told to me by those who do not understand what one day with Lupus or Fibromyalgia is like. Instead I rest in God, knowing my body is not created like others. Despite my body's working flaws  "I will praise You because I have been remarkably and wonderfully made. Your works are wonderful, and I know this very well. (Psalms 139:14 HCSB).
I am remarkably made, God's works are wonderful, he did not make a mistake, and I will praise him to bring him glory through the work he is doing with my wonderfully broken body. Today I will be thankful for paper plates so the dishes can wait. Clean laundry that my never get folded. A day to sit with my children and read. Yes, I thank you Lord, for this good day.

Wednesday, August 28, 2013

Somedays I Feel Like a Toddler

It's 6 am and I am getting up. I DON'T like mornings. I don't know what I was thinking when the receptionist said will 9:30 work and I shook my head. I must of been in a post sleep dream state. Yes, I can be here again at 9:30. I love mornings. We can do so much while We're in Fort Wayne/Toledo if we go in the morning.  Target, the mall, we could go to the zoo. Then I realize besides the fact I have no money. I am too tired and ready for a nap after the doctors and the drive. I still have to drive back. We'll stop at one store maybe two. I'll rest tomorrow. Oh, I have to do this again. I'll rest this weekend. Fine, I'll just run into Target and buy what I need. I won't look at anything. Eyes on the floor. Look at that hat, I really could use a new pair of shoes (use not need), storage containers (I can get organized)... Get back in the car and go home and take a nap. Somedays I feel like a toddler. I argue and throw mini tantrums with myself. I know what I have to do to stay healthy, but I just want to play while that bright yellow thing called the sun shines down on me. Pretend my body will not say that's enough you need to lie down after 20 minutes in it's warmth. So in my mind I am stomping my feet saying no this is not fair, while I take the drive home and get into bed for a nap. And as I lay there I remember how thankful I am that I can walk, clean my house, and cook. My kidneys and brain are doing what they are supposed to and I don't have a fever. I forgot how nice it is to not have a fever. Ok. Nap time is good.

Friday, July 26, 2013

There Is No "Easy Button"

I love the Staples Easy Button commercials. I find myself looking for that button often.  Being a wife and mother is difficult on its own but add in Type 1 Diabetes, Autism Spectrum, Lupus or any illness, past hurts, or lost hopes,  you may find yourself looking for that button on a daily basis. 
It comes down to this one simple fact. We live in a world full of sin. Not a single one of us is without. We hurt each other without even realizing with a quick word, a simple act.
Life is not fair. A lesson we teach to our kids every day. It's not fair you are sick, you can't handle the plans changed, somedays mom has to stay in bed. Life isn't fair. I hate to say this but it's true in a fallen world. 
As I was looking again for that Easy Button, I thought of the red service phone you find in the store.   If you need help you just need to reach out and ask for it. I realize I may never get to push the Easy Button but I will get down on my knees and reach to a God who is ready to answer with grace and mercy.

“Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light.” Matthew 11:28-30 NIV